Hi all. Michelle here. Unfortunately, Rich isn't up for writing the blog right now. However, we both wanted to update everyone. The last few weeks have been a bit of a roller coaster for Rich-- and a very rough one. He has had ups and downs in feeling ok and feeling bad, but has steadily been feeling more discomfort pain caused by both "MEL's" spread in is body and all of the meds that he is on. Mostly it's been in his stomach, but he also has head pain from the lesions in the brain.
Rich's foe, "MEL," is rapidly starting to debilitate him and it seems to be on a relentless path. In fact, he was admitted to CPMC/hospital yesterday. The doctors and nurses are doing their best to manage his pain and keep him hydrated. He is mostly sleeping, and he gets confused because of all the pain meds and sleeping aids. We are keeping our fingers crossed that they can get everything under control within a few days so he can come home.
One decision that Rich has made is to stop the Temodar/chemo treatment so he can be admitted to hospice care as an outpatient. He had one maybe two cycles left. The hospice will focus on palliative and comfort care, and provide a lot of services that we need at this point in time. This was a BIG and VERY DIFFICULT decision for Rich. We are hoping that the hospice team can make him fell much better and manage his pain for the duration at home.
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18 comments:
Our prayers are with you and your family.
Trisha and Ron Pergande
Our thoughts and prayers are with all of you at this difficult time. You are beautiful, strong and inspiring.
I am thinking of you and praying for you.
Alison Merring Blasetti
You and your family are in our prayers.
We will pray for strength, health, and peace for your family during these challenging times. With much love.
Sean Gill and family
Our prayers are with you and your family.
Our thoughts and prayers are with you all at this difficult and trying time. Our hearts are filled with sadness, but our good memories are everlasting and will never fade. We wish you all the best and will be there for you if ever you may need us. We love you.
We love you and wish you strength as you go through this difficult time.
-Elaine, Ray, and Alex
Michelle, We are here for you if you need anything. We enjoyed our visit with you and Lucy. Please tell Rich I think that you two have done a beautiful job with Lucy...she is a great little girl. I can't believe she was able to show Brendan how to play his first board game! Sonya & boys
My prayers are with you and your family. We have never met but my friend knows you and has kept me aware of your courage and kind spirit.
Kind regards,
Sue
Kentfield
Rich, your strength, tenacity, and courage is an inspiration to all. You and your family are in my thoughts and prayers.
Jeff Baum
Sending you peaceful thoughts and lots of love!
We are thinking of you. We pray that you all find peace on this journey. Thank you for the update Michelle. We are holding Rich, Lucy and you very close in our hearts.
Stephanie, Brandon, Zachary, Cameron
Thinking of you all, and hoping for peace and comfort in the days ahead.
richie, you, lucy and michelle are in our thoughts. your courage, drive and ability to stay positive through this has truly been an inspiration. ~ laurie and john
Michelle, Rich, and Lucy:
I wish the 3 of you an abundance of courage, strength, peace, and understanding.
With much love and respect,
-Dave Wilusz
Rich, Michelle and Lucy -
you are an amazing and beautiful family and I think about you constantly. You have more friends than you can imagine sending you their love.
Amy Clifford Jones
The Stang family continues to keep your family in our thoughts and prayers.
Suzy Burke
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